In all of the stress and craziness of planning for the HPE conference, some very good things have come out of it. Today, I talked on the phone with seven different HPE moms representing the states of Illinois, Michigan, Ohio, Indiana, South Dakota, and Oklahoma. I love talking with my HPE peeps! In planning for the conference, I also have had the opportunity to talk with several of Sammy’s doctors who are involved in the conference in various capacities. A lot of pediatric medical facilities use the phrase “family-centered care”, and often times, it’s nothing more than a marketing phrase. Today’s conversations with Sammy’s physicians reminded me once again about what a great medical team we had caring for our son and the lasting bonds we have formed with them.
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Sammy Yammy’s Mom
- Way to go, Daniel! Perseverance pays off! twitter.com/MattWeaverRA/s… 1 year ago
- Today was a big day in the history of @FamiliesforHoPE! Welcome Susan! twitter.com/FamiliesforHoP… 1 year ago
- RT @SRChildren_: Tyler was diagnosed with holoprosencephaly (HPE), a subset of cerebral palsy. Tyler’s family lived in Nevada but soon move… 1 year ago
- RT @pmmcgill: Thank you to Healthcare IT News and @SiwickiHealthIT for highlighting the work our team Community Health Network is doing to… 1 year ago
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