Thanks to everyone who joined us for the Chris Rice concert on Saturday. We enjoyed the evening and had a lot of fun. Sammy definitely would have enjoyed it. We did have a moment afterward to introduce ourselves to Chris Rice and tell him a little bit about Sammy. I so wish we could have introduced Sammy to him, but that will have to wait until we all arrive in heaven.
Not an excuse
12 AprWe had a good day on Sammy’s birthday. I think he would have been proud of the way we celebrated his birthday. As I thought back to Sammy’s 4th birthday, I remembered that I was serving jury duty that day. We had cake in the evening, but I missed out on spending that day with him due to my civic duty even though I could have used him as a good excuse for avoiding jury duty. I didn’t because Sammy wasn’t an excuse; he was a blessing.
5th Birthday
10 AprToday is Sammy’s 5th birthday. We plan to celebrate the day by joining our family and Sammy’s nurses for lunch. Then, we will all go to Sammy’s preschool and join his classmates on the playground for a balloon release.
The emotions of this birthday are similar to the day of his birth. Due to the prenatal diagnosis of Sammy’s HPE, we were facing the unknown on his birth day–we didn’t know if it would be a happy day or a sad day. That’s how it feels today, too. We’re hopeful that it will be a happy day, but we are preparing for some sadness too. On the upside, my feet and ankles aren’t swollen beyond recognition, and I don’t expect that I’ll be throwing up everywhere like I did on this day five years ago!
Sammy Yammy and HoPE 